Hawai'i & Pacific Deaf-Blind Project

NFADB Family Fridays: Fridays are Family Fridays at NFADB. We will be shining spotlights on the stories of families, and professionals who work with families of individuals who are deaf-blind. Today, we are sharing a video from one of our newest Board Member, Donia Shirley. She lives in Florida with her husband and two sons. Her youngest son Jaxson is 4 years old, and is diagnosed with Charge Syndrome. Donia shares a day in the life of Jaxson. She talks about their decision t...o start homeschooling Jaxson when COVID-19 pandemic hit us, knowing well that the virtual school model will not be able to meet Jaxson's educational needs. She shares the progress Jaxson has made this last year (Go Jaxson!), and the amazing home education plan including home therapy that she has created using tools, resources and webinars that are shared by NFADB, Charge Foundation, State Deaf Blind Projects and other organizations. She is passionate about advocating for families of individuals who are deaf-blind and wants to give back to the community. This is why she believes in NFADB. To learn more about NFADB, please visit our website at www.nfadb.org To share your journey with us and why you support NFADB, please send an email to [email protected] See more

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People repeatedly refuse to acknowledge I'm blind & this is part of #ableism. Erasing my disability is ableist. Treating me as though I can see, telling me I'm not "really" blind is ableist. Nondisabled people must do the work to understand accessibility. Video transcript Haben speaking: I've told you I'm blind. It says in my bio that I'm blind, but I frequently get pictures from people (inaccessible pictures) and not just people from the internet. I have a family member who ...regularly sends me photos and I have to remind them, "I'm blind. I can't see the photo. Please describe it. Photos are accessible when you add image descriptions, there are features on social media where you can add image descriptions, or you can just put it in the post or in the message. Sometimes it's harmless photos. Other times it's health information. It's a flyer for a social justice event, and I don't want to miss out on, on those events and, and those conversations. Society puts the burden on disabled people to make our world accessible. Society puts the burden on us to educate the world on being more accessible. That’s ableism. Ableism is the systemic oppression of disabled people. There are many layers to ableism. But at the core, it's the idea that disabled people are inferior to non-disabled people. This idea comes into healthcare, our schools, our workplaces, and our technologies. See more

For families with a child who is deaf-blind, making the transition from early intervention services (birth - 36 mo) to preschool can be stressful and intimidating! Check out our latest key topic for families: Preparing for Transition to Preschool. Learn what changes are involved and how families can make the transition as smooth as possible. https://www.nationaldb.org//preparing-for-transition-pres/

HKNC has replaced the word "deaf-blind" with the term "DeafBlind," language that is more consistent with that used by other national organizations and the DeafBlind community. This decision was made based on an anonymous survey with current HKNC DeafBlind staff, consumers and the HKNC Consumer Advisory Council. Image description: A man and woman stand indoors communicating with tactile sign language.

Join us!!! We’re teaming up with the Paul K. Longmore Institute on Disability at San Francisco State University to celebrate Crip Camp's Oscar nomination for Best Documentary Feature! A historic moment for the disability community, Crip Camp at the Oscars will truly be a night to remember. Join us on Sunday, April 25th from 3:00-4:30pm PST / 6:00-7:30pm EST for an evening of celebration, laughs and a red carpet dance party!! Register at tinyurl.com/crippingtheredcarpet. ASL ...with Deaf interpreters/CART/CLT/AD provided. For other requests, contact: [email protected]. . . . [Image description: Wavy lines in pink, black, orange, blue, and purple surround an empty round frame. White text in the center above the frame reads #CripCampAtTheOscars. In the bottom right corner is an Oscars statue in profile view protruding into the center of the frame. The Crip Camp logo is to the right, with a yellow triangular background behind. The Paul K. Longmore Institute logo is centered at the bottom. Text reads: "Cripping the Red Carpet. A virtual pre-Oscars celebration. Sunday, April 25, 2021. 3:00-4:30pm PST | 6:00-7:30pm EST. Register at https://buff.ly/320gdvt. ASL, Deaf Interpreters, CART, CLT and live audio description provided."] See more